BARRIERS TO PALLIATIVE CARE IMPLEMENTATION IN INDONESIA: A LITERATURE REVIEW
Article Sidebar
Abstract Views: 102
PDF Downloads: 79
Main Article Content
Abstract
. Palliative care services are an important component of the healthcare system to improve the quality of life of patients with chronic or terminal illnesses. In Indonesia, this service is still less popular than curative and rehabilitative care, although the need is increasing with the aging population and the prevalence of degenerative diseases. The WHO has emphasised the importance of palliative care as part of comprehensive care for non-communicable diseases. This study aims to evaluate the implementation of palliative care in Indonesia through analyses of policy, clinical practice, resource availability, and challenges and opportunities in its provision. The literature review was conducted using the PRISMA flowchart, using the keywords ‘Implementation, palliative care services, Indonesia, barriers’ on PubMed, Google Scholar, and Science Direct. A total of 35 articles met the criteria, 15 articles were selected based on relevance, publication between 2019-2024, and in Indonesian or English, focusing on barriers and implementation of palliative care in Indonesia. Barriers found include financial problems, lack of information and education, lack of training and education for health workers, lack of psychological and operational support, disparities in access and quality of care, and suboptimal development of community-based care and existing guidelines. With the implementation of appropriate policies, practices and education as well as further research, it is expected that the quality of palliative care in Indonesia can be significantly improved. This improvement will bring great benefits to patients and their families, as well as improve the welfare of health workers involved in palliative care.
Downloads
Article Details
References
Afiyanti, Y., Gayatri, D., Besral, B., Haryani, H., & Juliastuti, D. (2021). Unmet Supportive Care Needs Survey among Male Partners of Gynecological Cancer Survivors in Indonesia. Asia-Pacific Journal of Oncology Nursing, 8(6), 662–669. https://doi.org/10.4103/apjon.apjon-2113
Anissa, A., Hafifah, I., & Nasution, T. H. (2022). Gambaran Pengetahuan Perawatan Paliatif Pada Perawat Icu Di Rsud Ulin Banjarmasin. Coping: Community of Publishing in Nursing, 10(4), 385. https://doi.org/10.24843/coping.2022.v10.i04.p06
Budreviciute, A., Damiati, S., Sabir, D. K., Onder, K., Schuller-Goetzburg, P., Plakys, G., Katileviciute, A., Khoja, S., & Kodzius, R. (2020). Management and Prevention Strategies for Non- communicable Diseases (NCDs) and Their Risk Factors. Frontiers in Public Health, 8(November), 1–11. https://doi.org/10.3389/fpubh.2020.574111
Cederholm, T., Jensen, G. L., Ballesteros-Pomar, M. D., Blaauw, R., Correia, M. I. T. D., Cuerda, C., Evans, D. C., Fukushima, R., Ochoa Gautier, J. B., Gonzalez, M. C., van Gossum, A., Gramlich, L., Hartono, J., Heymsfield, S. B., Jager-Wittenaar, H., Jayatissa, R., Keller, H., Malone, A., Manzanares, W., … Compher, C. (2024). Guidance for assessment of the inflammation etiologic criterion for the GLIM diagnosis of malnutrition: A modified Delphi approach. Clinical Nutrition, 43(5), 1025–1032. https://doi.org/10.1016/j.clnu.2023.11.026
Cloconi, C., Economou, M., & Charalambous, A. (2023). Burnout, coping and resilience of the cancer care workforce during the SARS-CoV-2: A multinational cross-sectional study. European Journal of Oncology Nursing, 63(September 2022), 102204. https://doi.org/10.1016/j.ejon.2022.102204
Dahniar, D., Ibrahim, J., & Rahmawati, R. (2023). Pelatihan Kader Community-Based Palliative Care.
JMM (Jurnal Masyarakat Mandiri), 7(3), 2183. https://doi.org/10.31764/jmm.v7i3.14117
Dasat, M., Khasanah, U., Mulyono, S., & Anggraini, D. (2023). Hambatan Yang Dialami Keluarga Dalam Menjalankan Program Pelayananan Paliatif Pasien Kanker Stadium Lanjut. Nucl. Phys., 13(1), 104–116.
Dwi Nugroho, K., Asih, H. M., & Widyaatmadja, S. T. (2022). Studi fenomenologi : Gambaran penatalaksanaan pasien paliatif di area pre-hospital kota semarang phenomenological study: Overview of palliative Management in The Pre-Hospital Area of Semarang City. Jurnal Keperawatan Malang, 7(2), 43–54.
Effendy, C., Uligraff, D. K., Sari, S. H., Angraini, F., & Chandra, L. (2022). Experiences of family caregivers of children with cancer while receiving home-based pediatric palliative care in Indonesia: a qualitative study. BMC Palliative Care, 21(1), 1–10. https://doi.org/10.1186/s12904- 022-00986-5
El-Jawahri, A., Nelson, A. M., Gray, T. F., Lee, S. J., & LeBlanc, T. W. (2020). Palliative and end-of- life care for patients with hematologic malignancies. Journal of Clinical Oncology, 38(9), 944– 953. https://doi.org/10.1200/JCO.18.02386
Gysels, M. H., & Higginson, I. J. (2011). The lived experience of breathlessness and its implications for care: A qualitative comparison in cancer, COPD, heart failure and MND. BMC Palliative Care, 10. https://doi.org/10.1186/1472-684X-10-15
Hernández-Zambrano, S. M., Carrillo-Algarra, A. J., Augusto-Torres, C., Katherine-Marroquín, I., Enciso-Olivera, C. O., & Gómez-Duque, M. (2020). Perspective of health personnel on end-of-life care in Intensive Care Units. Enfermería Intensiva (English Ed.), 31(4), 170–183. https://doi.org/10.1016/j.enfie.2019.12.002
José Luis Castro. (2020). Palliative Care. Wold Health Organisation Media Team. https://www.who.int/news-room/fact-sheets/detail/palliative-care
Loechl, C. U., Datta-Mitra, A., Fenlason, L., Green, R., Hackl, L., Itzkowitz, L., Koso-Thomas, M.,
Moorthy, D., Owino, V. O., Pachón, H., Stoffel, N., Zimmerman, M. B., & Raiten, D. J. (2023). Approaches to Address the Anemia Challenge. Journal of Nutrition, 153(December 2022), S42– S59. https://doi.org/10.1016/j.tjnut.2023.07.017
Lubbna, S., & Lane, D. G. (2020). Mengembangkan Perawatan Paliatif Berbasis Masyarakat Di Indonesia: Belajar Dari Implementasi Sukses Di India Dan Uganda. Jurnal Kesehatan, 11(2), 133– 149. https://doi.org/10.38165/jk.v11i2.221
Matthew James Page, Joanne McKenzie, Patrick Bossuyt, Isabelle Boutron, Tammy Hoffmann, cindy mulrow, Larissa Shamseer, Jennifer Tetzlaff, Elie Akl, S. E. B. (2020). The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. MetaArXiv Preprints. https://doi.org/https://doi.org/10.31222/osf.io/v7gm2
Promono, W. H., Sugiyanto, E. P., & Prasetyo, C. H. (2023). Pelatihan program layanan kesehatan masyarakat tentang paliatif dan screning paliatif untuk pengurus untuk Panti. Jurnal Pengabdian Kepada Masyarakat (JPKM) - Aphelion, 5(Desember), 483–488. http://jurnal.globalhealthsciencegroup.com/index.php/JPM
Purba, C. I. H., Johnston, B., & Kotronoulas, G. (2023). An Exploration of Family Caregivers’ Health Care Needs When Caring for Patients With Cancer in the Resource-Challenged Context of West Java, Indonesia. Seminars in Oncology Nursing, 39(3), 0–6. https://doi.org/10.1016/j.soncn.2022.151369
Radbruch, L., De Lima, L., Knaul, F., Wenk, R., Ali, Z., Bhatnaghar, S., Blanchard, C., Bruera, E., Buitrago, R., Burla, C., Callaway, M., Munyoro, E. C., Centeno, C., Cleary, J., Connor, S., Davaasuren, O., Downing, J., Foley, K., Goh, C., … Pastrana, T. (2020). Redefining Palliative Care—A New Consensus-Based Definition. Journal of Pain and Symptom Management, 60(4), 754–764. https://doi.org/10.1016/j.jpainsymman.2020.04.027
Sinaga, E., Suprapti, F., & Kusumaningsih, C. I. (2024). Persepsi Perawat Tentang Perawatan Akhir Hayat (End of Life Care) Pada Pasien Paliatif. Jurnal Ilmu Pendidikan, 7(2), 809–820.
Torensma, M., Suurmond, J. L., van der Heide, A., & Onwuteaka-Philipsen, B. D. (2020). Care and Decision-Making at the End of Life for Patients With a Non-Western Migration Background Living in The Netherlands: A Nationwide Mortality Follow-Back Study. Journal of Pain and Symptom Management, 59(5), 990-1000.e5. https://doi.org/10.1016/j.jpainsymman.2019.11.026
Wilson, F., Wardani, E., Ryan, T., Gardiner, C., & Talpur, A. (2024). Barriers and mechanisms to the development of palliative care in Aceh, Indonesia. Progress in Palliative Care, 32(1), 22–28. https://doi.org/10.1080/09699260.2023.2256177